My last post had me in the hospital with the beautiful caring people at Kaiser's San Leandro hospital. On Wednesday before Thanksgiving we decided coming home would be best for me. No further chemo would help me and my oncologist Dr. Kuan told us home would be best. We talked to Patti the social worker and she told us about the care we could get from Hospice.
Our next thought was how we could maneuver the 26 steps into our apartment. Gurneys would be too big and bulky to work. I figured I would have two studly good looking men carry me up. No, in fact two beautiful petite young women showed up. They were strong as an ox. We arrived at home and we waited for a handsome man to bring a special gurney chair. They carried me upstairs backwards. It was a wild ride.
After settling in I was transferred from Kaiser to Hospice. Hospice came later in the day to make an assessment and go over procedures they would use. 4 days a week someone from Hospice will be here for about an hour to go over what has transpired from their last visit, bathe me and help with light housework. The next two days we spent rearranging the apartment to accommodate a bed for me and other equipment. Our son Erik helped with moving things around too. On Saturday they delivered my bed. The bed is electric and my brother and Marty bought rich red sheets to cheer me up. Red matched other furnishings in the room that are red.
Every day my legs are stronger but I am still very weak. I'm trying not to be cranky but seems like everything upsets me. Then I am mean and feel like a bitch. I am eating more day by day as I get further away from my last chemo treatment. Little brother Hank and his wonderful wife nurse Ann have been a godsend to us. They have taken care of me and helped us cook, wash dishes and clean the apartment. When they leave it is going to really get hard.
Posts will be more irregular because we are overwhelmed with this change in our lives. We want you to be informed about my condition but just check Facebook and my blog because it is difficult to keep up with all of the phone calls and texts. If you are healthy and will wear a mask you are welcome to visit for a very very short period because my energy level will not let me be sociable for very long. My voice is also very weak.
To all of the prayer warriors to pray for calmness bravery and acceptance. Pray for Marty as my caregiver He has also been writing this as I tell him what to say. God bless each and every one of you with much love.