Showing posts with label care givers. Show all posts
Showing posts with label care givers. Show all posts

Sunday, August 9, 2015

No chemo this week

Monday I  had lab work.  I always get the results almost before we get home.  I check the platelets because if they are low, no chemo.  The other tests, and there a lot of them, I don't understand or don't think they are a huge factor in whether I take chemo.  Well that afternoon the nurse called me and said no chemo this week.  My white blood cells are too low.  I do know that one.  In the past they have given me shots to improve the white cells and talked about blood transfusions.  So this became an off week.

We are to leave Tuesday for Louisville and I was afraid they would want me to stay home.  Would they change my August schedule? Would I have to do chemo on my planned off week? The trip was planned around my off week and when Mark (our giver of frequent flyer miles) could take vacation with us.  I still get my off week.  Tuesday I will have chemo if all is well, and we take a redeye that night. 

When I asked the nurse if this would mess up our planned vacation, she said, "again a trip?"  ( yes this will be our third trip this summer:  Dallas, San Diego, and now Louisville)  I told her I have a limited time I will be able to travel and I have family and friends to visit. 

The rest of the week I did normal things.  I cooked more than usual and when I didn't cook I did the dishes.  I walked 30  minutes every day.  Wednesday afternoon Erik, our son, came to visit and to help out with domestic duties.  I had broken beans the day before and put them on to cook and fixed a chuck roast in the crock pot.  We all agreed it was a fabulous meal.  Nothing better than fresh green beans cooked low and slow, with just a little bacon grease and other Southern secret ingredients.

Friday I went to brunch with Kirsten and later Pat joined us at my home.  We had a gab fest and caught up on what each was doing. I am so lucky to have these ladies in my life.  

I have lots of friends that check on me, visit me, Facebook me, call me.  Another dear friend, Janet R (so you know it isn't me, they call me Janet A) texts or emails me nearly every day.  Janet R checks what is going on, how am I doing, am I happy, do I need anything.  We ask Janet R to join us, but since she owns a business, she can't get away often.  So we don't see her much. 

Today, Sunday, I went to church.  That is a big deal.  It is a 35-40 minute drive.  I have to be up and dressed earlier than usual.  Meds must be taken early. And there is the emotion of the love I feel from my church family.  When we get in the car to drive home I am pretty well whipped.  But it is worth being tired. 

So normal is good.  I felt good most of the week, not as tired, and very little nausea.  I am not sleeping very well, but I blame the bed hog I live with.  I love Marty so much, but this week he has royally ticked me off.  He is sleeping on a diagonal, that would be with his head on MY PILLOW.  He also stole the prop my arm up pillow.  He took all the covers, and then complained how hot he was during the night. My complaining about him is an indicator I am feeling better.  For some reason when I feel better I feel justified in being ticked at the best caregiver ever.

Keep your fingers crossed that I can take chemo on Tuesday.  I get scared when chemo is put off.  I am afraid the tumor will get ahead of us.  So never ever do I want to miss a session. 

Sunday, August 10, 2014

I have noticed

Whether it is a marriage ceremony or walking every day, I see things that are interesting.  I also am a little nosey and see interesting things around our neighborhood.

The reactions of brides and grooms are sometimes funny, sometimes sad, and sometimes worrisome.  Nervous brides/grooms will laugh uncontrollably.  One bride bounced the whole ceremony.  Others cry.  But the worrisome ones are the bored with the ceremony people.  I feel those marriages won't last the year.

But none of these may be an indicator of a lasting relationship.  I do have an ending on one marriage I did.  The couple separated two months after the wedding and now are in a court fight deciding if it will be a divorce or an annulment.  I know this because I was deposed to tell if I thought they knew what they were doing etc.  FYI, yes they were in their right minds and not on drugs.

When I walk every day I try to make eye contact with everyone I meet.  I say hello/morning to them.  Most will nod, and say morning.  But a few try to make themselves invisible and look away, ignore me, and just rush by.  I walk a regular route most days, if not at a regular time.  Some shop keepers and I wave to each other, which feels good.  Very small towny. 

Now to my neighbors.  Right in our parking lot I have seen stuff.  The man M who is always late for his ride to work.  Now that would be none of my business but his ride shows up at 5:30 A.M. with radio blaring.  M is never waiting for the driver.  The driver gets out of his truck and whistles loudly, nothing, then yells M, M, M, nothing.  Sometimes he goes up to the door and M finally comes out. 

M is also the idiot person who charges down the steps, starts their car, and then honks and yells for his wife and kids to get in the car.  He can be late but not allowed for anyone else.

Then we had the higher than a kite woman doing laundry.  Never had seen her before, she does not live here, but hey she was really mellow.

Across the street lives a very old sick woman.  She has several care givers who, from the little we can see, are very kind.  She has several young men that are there 24 hours a day.  Some come and go, some look like they are live in.  Marty and I have seen these men carry her out to the car.  It always looks as if they have a precious bundle in their arms.  If she is having a good day, they place her on their feet and put their arms around her and "walk" her into the house.  They wave to me when I walk by, and I wave back. 

Lots of stuff goes on in a neighborhood, place of work, school etc.  You just have to observe.